A blog for people affected by MS, by people affected by MS. MS is different for everyone - we hope this blog reflects this.
A Yank’s Life With MS
Ms has (External) changed so many aspects of my life , and all of them for the worse.
Dave is 41 and was diagnosed with relapsing remitting MS in 1995. He worked for many years as a manufacturing manager / external sales manager. He tells us why he thinks the ESA system is not fit for purpose.
I have always managed to see the funny side of most things, and my experiences with primary progressive MS are no exception.
I've found all sorts of things very funny - surprisingly so, in many cases.
MS means you quickly work out who your friends are.
I’m not counting your family members who have a duty to understand as best they can, and ‘be there’ for you whenever possible. No, they have little choice (like it or not).
It took year of relentless relapses that left me completely dependent and wheelchair bound, to get the consent for Tysabri .
I have to confess that I feel a bit of a fraud writing this. Oh, I have multiple sclerosis, but not so as you’d notice. If we met on the street, or you had to pick me out of a line up, you wouldn’t pick me as the woman with MS.
A Yank’s Life With MS
There are three things that annoy me about having Primary Progressive MS . The first one is obvious: it's annoying to struggle to get around, to be very very slowly losing the use of my legs. The second one is a detail: I hate it when people refer to my wheelchair as a 'chair'.
It’s a chilly September morning as I steel myself to wave goodbye to my husband and two sons, two of them about to start a new adventure – adventures which I am not included in.
To be honest it was probably my own fault. I did ask for it!
Multiple Sclerosis Society. Registered charity nos 1139257 / SC041990. Registered as a limited company in England and Wales 07451571
(External)
image: Fundraising Standards Board